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What simple inexpensive things can I do to manage GDD?

One of the major problems that most people describe about the disease is that treatment can be very expensive, and to travel to a center to get treatment and stay there, can also be expensive. So this is for all those individuals, and for all sufferers actually in general. What simple, inexpensive things can I do to manage GDD at home? I will start by mentioning that I come from the tradition of evidence-based scientific methodology for the treatment of diseases. In that tradition, I keep in the back of my mind, that a large study was published a few years back in the New England Journal of Medicine (NEJM) that oral multivitamins may not have additional life prolonging benefits for the major

Gadolinium Deposition Disease Brain Fog

One of the most vexing issues with Gadolinium Deposition Disease from a scientific perspective, is what is the explanation for brain fog? From a historical perspective, for centuries cognitive impairment has been recognized with other heavy metals, notably mercury and lead, so the concept of brain fog with heavy metals is a well recognized disorder for a very long time. It would seem reasonable to assume that the cause for brain fog may be a feature common with heavy metal toxicities. So studying literature on lead toxicity and brain function impairment should provide supportive information on Gd toxicity. Gadolinium is a positively charged atom, like calcium, and also has an ionic radius no

Treatment for Patients with Gadolinium Deposition Disease

Whereas underlying symptoms and causes for GDD are fundamentally interesting for sufferers, what people really are most interested in is: "what can I take so I feel better or recover from GDD?" I intend that this particular blog will undergo frequent revisions as more becomes known about treatments, and the results of treatments. Also with this posting I am reaching out to the global community of sufferers to let me know if they have taken things that have made them feel much better. For a number of reasons, mainly based on science I will likely not post individual recommendations, if they don't clearly make sense to me, unless a number of independent sources report the same benefit. I take

Updated: Identifying features that make it likely that you have Gadolinium Deposition Disease

In this blog I will describe the principal features that are necessary to make the diagnosis of Gadolinium Deposition Disease (GDD), so individuals can understand what the strange illness they are experiencing is, and so health care professionals understand what the features are. I should note that I am deliberately employing strict criteria, which will likely eliminate a number of subjects who actually have the disease, but I anticipate this will expand as more is known about the disease. This is the most recent revision to the original article, Identifying features that make it likely that you have Gadolinium Deposition Disease. Gadolinium Deposition Disease The first critical diagnostic f

Michigan State University Pays out $500 million in Settlements to Larry Nassar Victims. A Precedent

I am certain that all victims of health care injuries, especially when it seems to be systemic in nature, have paid attention to this head-line. Perhaps the tide of endemic cover-up is changing. There are a couple of crucial aspects to the entire MSU case that have escaped attention but are of fundamental importance in the ethical evolution of health care. The first point is that no physician, especially no male physician should be handling the genitalia of children (especially girls) to the age of 18, except under very special circumstances. This point was emphasized to me when in discussion of the Nassar case, a female physician friend of mine described that as a girl she was always ter

Gadolinium Deposition Disease Head Pain

In our patient surveys on this subject, and communicating with a number of sufferers, head-ache is described as a very common feature. I had not including it as a critical feature, as head-ache is a very common and nonspecific experience that everyone gets. With more reflection, I believe it is worth adding in as the type of head-ache or head-pain may be quite distinctive. Head pain (early stage GDD onset). Headache is both a very common occurrence and also shows tremendous variability, so it is difficult to pin down the exact type of head-ache that may characterize GDD. GDD sufferers describe it as a head pain, and unlike any other type of head-ache they have previously experienced. These t

The Importance of Being Hydrated for Contrast-Enhanced Imaging Studies

It cannot be emphasized enough that prior to undergoing a contrast enhanced imaging study, this applies to iodine contrast enhanced CT as much as to GBCA-enhanced MRI, the individual must be adequately hydrated prior to receiving the contrast agent. One can add to that, that the patient should not be in an acidotic state. Over the years, and especially in regards to iodine contrast enhanced CT, with the intention of warding off contrast-induced nephropathy (CIN), a number of scientific articles have described a variety of strategies to minimize the risk of getting CIN, which have described techniques such as using N-acetyl-cysteine or sodium bicarbonate or other chemicals. I always prefer si

Revised Main Clinical Criteria for Gadolinium Deposition Disease

I have received some well-informed recommendations from patient experts on the disease. The revision to main criteria I am revising sooner than I had anticipated. This revision is for my pervious article Identifying features that make it likely that you have Gadolinium Deposition Disease. I had wanted to change it earlier, and the reader would have noted I used 3 on at least one occasion where I should have written 4. Observations from 2 physician sufferers have contributed to my revising these criteria as well. Here goes: There are 5 primary clinical diagnostic findings for the Disease. In my extensive interactions with sufferers and publication of peer-reviewed studies and surveys there ar

Identifying features that make it likely that you have Gadolinium Deposition Disease

In this blog I will describe the principal features that are necessary to make the diagnosis of Gadolinium Deposition Disease (GDD), so individuals can understand what the strange illness they are experiencing is, and so health care professionals understand what the features are. I should note that I am deliberately employing strict criteria, which will likely eliminate a number of subjects who actually have the disease, but I anticipate this will expand as more is known about the disease. I will start from the beginning: why did I come up with the name Gadolinium Deposition Disease for this illness, many others have asked me, why not this, why not that. To start with, at least in the name o

Gadolinium Toxicity: Gadolinium Deposition Disease - Part 2

This is a continuation of my blog post Gadolinium in Humans Revisited: Emphasis on Gadolinium Deposition Disease. Mechanisms of disease. Currently the various mechanisms of disease are theoretical in nature. As a result, even my closest working associates have differing opinions than I do. I will focus on my opinions but describe the various elements, that are the cause for varying opinions. My belief is that because both acute hypersensitivity reactions and NSF are immunologic in nature, and GDD is related to them, it stands to reason it is also immunologic. Immune cells are the gate-keepers for response, and also show the greatest variety of responsiveness of all the cell systems in the bo

 
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